Today was our evaluation for speech at Children’s Healthcare at Druid Hills and I was very excited for this visit. We already use this location for his Occupational and we love the staff. Seemed perfect to switch over to CHOA instead of the private pathologist, who we have not seen since December. And don’t even get me started on the joke of a service the school was giving him.
So we go to our appointment and all is well until she asked me if I was aware of the insurance change. Um, no. As of May 1st Children’s is viewed as a hospital with ‘hospital’ treatment. So if newly diagnosed, can receive the first set of treatments. Or for better explanation, short term treatment. Like physical therapy after a child who broke their arm. CHOA can do the evaluations but not the long term therapy.
Start Over Again!
This was a double wham in not only do I now still have to find someone to continue speech with; but once our already approved visits are up in October, I will also need to find a new occupational. I hate this. I finally have one place I feel can help my child and I know they will do a great job, and now I have to start all over. Not to mention DJ is used to his therapist and now will have to adjust to someone new.
How Did DJ Do?
I left feeling good despite his score being that of around a 12 month old. This is progress for 6 mths ago his results were at a 9 month old. And the therapist, Ms.Heather was so sweet. She loved DJ and couldn’t get over just how happy and sweet he his. She kept asking if he was always like this. Plus when she saw how well he engaged and how well DJ would listen to me, she said that I was doing a great job. I actually felt confident in my parenting skills and that I was helping my child. That he WILL succeed.
What About The Future?
Then I read the news report tonight. The one where the Autism Reform went before mandate. How yet again, the powers that be say it’s too expensive to insure these children. Then my mind starts. If my son is doing so well with what we have done and have to work with; just how much better could he do if he could have what he really needs? What if he could have full ABA? What if he could have whatever therapist he needed? Would he be talking by now? Would he be ready for school on a mainstream level? And then the tears come. And the worry. All the ‘bright sides’ flew right out the window.
I’m not asking for expensive, experimental, non-proven treatments. All I’m asking for is to give my child a fair chance at life. To be able to develop the skills that everyone else has by nature. To have access to the therapies that have a PROVEN track record. That will help my son to function on his own in this world. Is that really too much to ask for? Am I being unrealistic? Because I have to tell you, that sometimes; my reality just plain sucks!