Autism Services In New England: Good or Bad?
As many of you know, our family recently moved back to New England. Massachusettes to be exact. Although I was born and raised here, I know nothing about autism here. Heck, growing up the only thing I “knew” about autism was from the movie Rain Man and that is a far cry from what many individuals with autism are like.
Should We Move?
Besides my family and friends being here in New England, autism was a big factor in moving back here. Georgia is among the worse for being Autism friendly. Which is strange since they have one of the biggest and best facilities in the country, The Marcus Autism Center. And after years of fighting, days in tears and even developing depression; I felt I had spent more than enough time trying to make it work.
So I started to research services in other states. Many have support groups and even some amazing teachers, but the ease and approval aren’t always as good. The worst of the worst is Alabama, Idaho, North Dakota, Oklahoma, and Wyoming. Not so hot include Georgia and Ohio, South Dakota, Hawaii, Tennessee, Mississippi, and North Carolina. But each of these has either introduced autism health insurance legislation or are in the process of doing so, but again too late GA. JR is too old for what has been passed in GA and at age 9, I don’t want to keep waiting.
My search continued with finding ratings for the best states for those with autism. The list is as follows:
- Los Angeles
For states as a whole, these four rank top for in each of these states they 1. Mandates ABA with no age cap, visit or financial limits. 2. Offer the ABA benefit on their ACA plans and 3. Has or are in the final stages (MA) of implementing an ABA benefit for Medicaid through EPSDT.
The Answer Was Clear!
So I had my answer. One of the top four states is Massachusetts. My parents, my brother and several of our friends live in Massachusetts. It is home to me. I grew up just over the state line in Burrillville, RI and have several more friends in that state. My daughter was born in MA. This is where we need to be.
There is a lot of personal stuff that happened to help make this choice. Such as my husband’s job did away with his position and put him back in sales. Auto sales in Sept and Oct are horrible and we would have been going in with no backup or reserve for those months. We just wouldn’t have made it. Since changes had to be made with work and housing, it was time to make big changes.
So far everything is much easier here in Massachusetts. I don’t have to fight or make 50 phone calls just to get information. After being kicked out of the Marcus Center where JR received ABA therapy for only 2 months, here with our private insurance; I can have an ABA therapist come to our house! Yes you read that right. They will come to us! And insurance will cover it! No federal or back up insurance needed.
I will admit that as of this moment we don’t have much going on for JR as we are still looking for a place. I hate to change up his doctors and therapist just as he adapts to the new routine. We hope to be settled within the next month and I will be sure to share more from a personal standpoint.
Do you live in Massachusetts with a child on the spectrum? What has been your experience? Share below what you like or dislike about services you have dealt with.